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The news that everyone has been waiting for….

Thursday was a huge day for all of those with Cystic Fibrosis and will go down in history as a day to remember.

For many years people with CF have been fighting for access to the drugs Orkambi and Symkevi. Six weeks ago Scotland announced a deal to license the drugs but nothing came from NHS England until this week. Wales and Northern Ireland are still waiting but surely with the precedent that has been set by Scotland and England it is just a matter of time.

The Cystic Fibrosis Trust made their announcement on Thursday 24th October and thanked the CF Community for all their support and campaigning. To read the whole press release click here.   Over the years that Banana Crumble have been in existence we have featured several pieces from people asking for this so it is really good to know that when so much around us at the moment seems to be doom and gloom that there really is some good news about.

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Asda – more than a supermarket

Asda have been a great help to us here at Banana Crumble. For our launch night they donated raffle prizes including a huge bunch of bananas and are once again supporting us when we run our Banana Crumb-Ball in October. We are very grateful to them and the team that have helped us raise lots of money for the Cystic Fibrosis Trust.

Last Sunday Asda had given us the opportunity to run a table at their Shoeburyness Store where we could organise  a Tombola. They had helped by donating lots of prizes which got us off to a great start. With other donations we managed to get 50 prizes and had a full looking table at the start. We had absolutely no idea how this would go and after a few minutes when no one had bought any tickets we were joking about the fact we would probably have to take home all of the prizes at the end of a day.  We were absolute amazed by the fantastic support we received from the people in Shoebury and at the end of the day we raised £188.70. A fantastic achievement and yet another amount we can be proud of.

We had several highlights during the day. Firstly a huge thank you to all our friends that came and supported then also to the two children who literally made our day. One young lad won a bubble making machine that had been donated by Asda. The smile and excitement that went with that prize certainly made the whole day worth while just to have made someone so happy. The next one, almost as happy was one lad who wanted to put his pocket money in the donation box. We said why don’t you buy a ticket. He did and won a big box of chocolates. Another huge smile. People just stopped and chatted which was really nice and it was amazing just how many people had been directly affected by Cystic Fibrosis or knew someone that had been diagnosed with it. The time absolutely flew by and tickets sold quickly. We actually ran out of prizes and tickets before the shop closed but were really pleased with how the day had gone.

A huge thank you to Asda for all of their support and to let them know that their help is really appreciated. We are looking forward to your continued support for our Ball in October and also when we are planning to run another Tombola before Christmas.

Sign up today for your regular dose of good news. Sign up takes 2 minutes.  By signing up, reading, sharing and liking our articles, you are helping us raise money for the Cystic Fibrosis Trust! Thank you!    

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Why not wear yellow for a good cause?

Yellow isn’t always everyone’s go to colour but it is always bright and cheerful whenever you see it being worn. Friday 21st of June is The Cystic Fibrosis Wear Yellow Day and they are asking everyone to wear yellow to raise awareness and also to donate some funds to help them in their fight to find a cure for CF.

The Cystic Fibrosis Trust are asking people to take a CFYelfie and to share it on your social media using #CFYelfie. To see more take a look at their website for further details. Last Year our very own Chief Banana went to Ascot sporting a pair of yellow socks so even with the very strict dress code he was able to show his support of the CF Trust. Why not do your bit and wear yellow on Friday and help raise funds and awareness.

Sign up today for your regular dose of good news. Sign up takes 2 minutes.  By signing up, reading, sharing and liking our articles you are helping us raise money for the Cystic Fibrosis Trust! Thank you!

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Banana Chat- meet Ben Knowles

I am Ben Knowles a 29 year old from Kent. I work as a freelance musician, both teaching and performing. I play viola and piano but am more active as a conductor of both symphonic works, opera and musical theatre. For the past two years, I have been participating in large numbers of endurance events (marathons, bike-rides, swims, Ironmans, etc.) to raise awareness and money for Cystic Fibrosis. 

What is your favourite joke?
Too dark to write here!

What makes you smile?
Cats – massive cat-lover. Music (my job and hobby) and making other people happy.

What is your favourite good news story?
When my CF student had her annual review and her lung function had improved.

What inspires you?
Two people I have met with Cystic Fibrosis – one is the reason I got involved in the campaign, a young girl I have taught violin since she was 4, who approaches life with an amazing enthusiasm; the other is a Banana Crumble writer, Natalie Crawford, who has CF and ran the London Marathon in four and a half hours.

If you could change one thing in the world what would it be?
I’d want to see everyone have their health – both physical and mental so they could enjoy their lives without limits.

If you could have one superpower what would you choose and why? 
Healing touch – it is very tough seeing people, especially ones dear to me, suffer with illness and pain. I’d give anything to take it away from them. 

What is your favourite food? 
Pasta! 

What is your favourite drink? 
Pineapple juice 

If you are going on holiday what luxury item would you take from home? 
Books! 

If you could make one law, what would it be and why? 
I’d make it illegal for pharmaceutical companies to overcharge for medications – an independent body would set a price that would be fair to the company but affordable to the health service and proportionate to the prevalence of the illness to the country. I’d make this law so health wasn’t dictated by money. 

Give us a random piece of information about you that people wouldn’t know? 
Very nearly went into psychology instead of music. 

What is your favourite phrase or saying? 
“There are no magical fixes. It’s all up to you. Nothing in this world that’s worth having comes easy.” 

What cause, project or event would you like to promote? 
Cystic Fibrosis! We desperately need Orkambi, Symkevi and the Triple Combo medications available in the UK on the NHS to save the lives of 10,000 people who suffer this hideous illness. 

Who is your favourite music artist? 
Janine Jansen – concert violinist 

Who is the person that you feel has shaped your life most? 
Hard to choose between my close family members but probably my Grandad – he got me into music which is now my job and hobby. 

PJ’s or Not? 

Hot or cold? Hot 

Cat or dog? Cat 

Blue or pink? Red!! But blue if I had to choose 

Tea or coffee? Tea 

Glass half-empty or glass half-full? Half-full 

Pyjamas or not? Not 

Night out or night in? Night in 

Pizza or pasta? Aw can’t it be both? Pizza surrounded by pasta! 

Biscuits or cake? Again, can’t it be both? hehe. Cake layered with biscuits! 

Wine or beer? I don’t drink but I enjoy a non-alcoholic beer

Football or rugby? Football

Cinema or theatre? Theatre

Gym or TV? Gym 

Naughty or nice? Nice (although naughty can be fun in the right setting!) 

Silver or gold? Silver

Tent or hotel? Hotel

Bath or shower? Bath 

Starter or pudding? Pudding

Sheets or duvet? Duvet 

Love Island or Game of Thrones? Game of Thrones (only seen bits of it though) 

Finally, apple or banana? Bananas when they’re very ripe! 

Sign up today for your regular dose of good news. Sign up takes 2 minutes.  By signing up, reading, sharing and liking our articles, you are helping us raise money for the Cystic Fibrosis Trust! Thank you!

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Who is wearing these socks and why ?

Yesterday (22nd June) was The Cystic Fibrosis Wear Yellow Day. In 2017, over £40,000 was raised for the Trust and they are hoping to have gone one better after yesterday’s events. We will of course update you when the final figure is known.

Events were and will be held all over the country with people dressing in yellow. Our very own Chief Banana went to Ascot and despite the strict dress code managed to sport a pair of yellow socks to show his support for the Trust. See our feature photo and the one below showing the full effect.

It isn’t too late to donate  to The Cystic Fibrosis Trust. You can text yellow to 70500 to donate £5 to them and of course you can upload your own Yelfie, which is of course a photo of you wearing yellow. This is the photo that Banana Crumble submitted!!

We are running our own smile wall competition for the months of June and July where our theme is yellow in honour of The CF Trust. Why not submit your own photo and be in with the chance of winning a £75 Amazon voucher. Our competition closes at 10pm on Tuesday 31st July.

Group photo courtesy of The Cystic Fibrosis Trust

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Banana Crumble hosts its very own Curry Night

June is the month in which the Cystic Fibrosis Trust hold their annual Wear Yellow Day and we have decided that as well as running our own yellow theme Smile Wall competition we also thought that we would host a local curry night to raise some more funds for the CF Trust.

The event was held at The Polash Restaurant in West Road, Shoeburyness, Essex. Over 40 people came along to help add some money to our totaliser and on the evening we are really pleased to say we raised over £600. (We will publish the exact amount after everything has been counted!)

Here are some of the photos from the event showing what a great time we all had. Even some of the Banana Crumble team wore yellow!! There were talks from inspirational CF ambassador Sophie Holmes and her father Peter,  and of course from our very own Chief Banana Matt! It was particularly great to see Matt Pinnock from the Southend Round Table as just a few weeks ago they had awarded Banana Crumble £500 to put towards their fundraising for CF and presented the cheque on the evening. To read about this donation click here

We would like to say a huge thank you to The Polash for such an amazing evening and for some really tasty food. Also again to the Polash and to Mangetout for donating raffle prizes and to everyone who joined us to help make it such a great evening. On the night the biggest cheer went up when the bananas  and the Banana Crumble T-shirt were won in the raffle.