Cystic Fibrosis (CF) is a devastating condition that affects over 10,800 people in the UK. It’s caused by a faulty gene (which comes in a number of different genotypes) that affects how salt and water move in and out of cells. This means the lungs and digestive system fill with thick mucus, making it hard to breathe or digest food properly.
There is no cure, but there are treatments, which carry a heavy burden – hours of physiotherapy each day to loosen the mucus, and handfuls of tablets and inhaled treatments to help keep the lungs clear of infection and give the digestive system a much-needed boost. The median predicted survival age of people living with CF today is 47, and that number is going up with each year and each new medical breakthrough.
Sadly, this often isn’t enough and the average age at death is just 28 years old. Lung infections cause frequent hospitalisation and complications can mean that the bones, liver, reproductive system and many other parts of the body are affected, and a double-lung transplant is often required.
The Cystic Fibrosis Trust is fighting for a life unlimited for everyone affected by cystic fibrosis.
That means investing in cutting-edge research to find new medicines and treatments, promoting great care and well being, advocating for our community to turn up the volume on issues like access to medicines and transplants, and providing information and support to people who have to overcome so many additional challenges each day as a result of cystic fibrosis.
We are part of a fantastic community that is dedicated to making a difference. By supporting Banana Crumble you become an essential part of that community, bringing us closer to beating CF for good.
Sophie Grace Holmes, 26 from Essex
Sophie is a dedicated fitness fanatic, health and nutrition enthusiast, blogger, personal trainer, fitness model, Public Speaker and sports massage therapist. Sophie decided to make her health a priority aged 19 when her lung function plummeted to just 60 per cent because of infection. It was the first time since her diagnosis at four months old that her family thought they were going to lose her. After two weeks in hospital Sophie returned home and trained as a PT. Sophie now runs her own successful business as a personal trainer and trains with celebrities including ex-TOWIE star Lucy Mecklenburgh for her Results with Lucy (RWL) fitness program. She said “I have lost friends to cystic fibrosis and I am lucky enough to still be here – they drive me forward.”
Clicking on the logo below will take you to the Cystic Fibrosis Trust web page and this contains lots of further important details on the condition and further ways in which you can help.
Logo © Cystic Fibrosis Trust 2017. Registered as a charity in England and Wales (1079049) and in Scotland (SC040196). A company limited by guarantee, registered in England and Wales number 3880213. Registered office: Cystic Fibrosis Trust, 2nd Floor, One Aldgate, London EC3N 1RE.